How CBS has helped me

Eye barriers image showing hallucinations from CBS Charles Bonnet Syndrome

Hi all,

It has been a while since my last post, apologies. I have missed writing for you all but I have been quite busy, with starting my therapy practice and taking more of a role in Esme’s Umbrella and volunteering with the sight loss council. Fitting in a writing session has been difficult. I have the day off now and I am going to make the most of the sunshine. So here goes…..

I wanted to bring you up to date with what I have been doing to help create more awareness and educate people about Charles Bonnet  Syndrome. This is the condition I developed when I lost my sight. The condition causes silent vivid hallucinations. It is at times more difficult to cope with than the sight loss but I am managing to find coping mechanisms. One of these is to talk about my experiences and to share with others in the hope that it will help. It certainly helps me! 

I started a Esme’s friends group in Manchester, this currently runs online only at the moment. I am also facilitating the nationwide groups keeping them all up to date with Esme’s Umbrella information and allowing leaders to share their experiences. I truly believe that learning from each other is so powerful and helps us to move forward with more knowledge making the service better for everyone. 

I am also taking part in a few talks over zoom. Some of these are for other Esme’s friends groups and some are for organisations. I am talking with Judith on one for the sensory team in the midlands. Having involvement in these projects have been such an amazing honour and in helping create awareness of this condition which effects so many, really helps me too. 

I have also been asked to write a piece about my journey and condition for a magazine called Barriers to Bridges. This is a publication that removes barriers of marginalisation and building bridges to empower communities. This publication is exactly the kind of thing I was excited to be apart of. You can find my piece here or on the below link. Please do share it with your friends and families as the more we can get information out the more people we can help. 

I am not known for my patience, you can ask anyone close to me! Yet I have found the last 3 years have flown by. When I decided I wanted to help others by sharing my stories, I was unsure it would help and didn’t really know how to do it.  I think I have begun to trust in the universe and just flow with what comes my way and trust that it is the right work. If I do this things will naturally find me. I am definitely not as impatient as I once was. 

If you would like to work with me either by me talking at an event or writing something please email me at I would be honoured to be apart of your work and help you to create more awareness of inclusivity, awareness and mindfulness. 

Hope you are enjoying the sunshine where ever you may be.

Sending love 

Nina xx  


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