It has been a while since I have posted a new blog, I know you have missed me. LOL!
I have been throwing myself into planning a new support and social group for Visually Impaired (VI) people. I have found through my sight journey, especially since my sight loss that there is not a lot of support for (VI) people of working age.
These are in the 25-45 age range and can be working, parents or in that age group. There is support online and the odd group but I have found that there is nothing local to Manchester central. The groups I have come across are great but are to far out or are of an older and younger age group.
So that is my new mission.
Enough about that for now, I just wanted to share with you some of my musings. I have found I wanted to get down in words what I am experiencing with my Charles bonny. Syndrome. These are the visual hallucinations I have developed since losing my sight and experience as long as I am awake. I hope this makes sense and you enjoy.
When I sit amongst the cloud of green yellow and white
I start to think of things that have passed.
Then I think of things that Might have been
as the darkness slowly circles the light
I can finally see what has been has been
What do I say, what do I do
These hallucinations are here day to day
An eclectic array of imagination
Do I fight it or do I stay
There they are, just floating images from my brain.
still doing its job. If only it knew I couldn’t see.
I just may get some peace and be able to just be
Well the images are floating they are a distraction some might say
But I don’t know which way I feel if they stay there in the way, or if they go.
How will I Know either way but I try not to be in despair.
Before I lost my sight all I thought was what if I lost my sight
What if I couldn’t see the sky the colours the faces?
I think that is why my brain still holds these fears.
I think that is why my hallucinations see all the things I wish I could still see
So what is left to fear and see.
See you soon.